Wednesday 24 October 2012

Scare!

Last night I was doing my night time dose of meropenum and mid-way through I started to get a sudden back and stomach ache. Then a few seconds later my airways started getting really tight and I was struggling to breathe. My body swelled started going really numb and apparently my face swelled. It lasted for about 5 mins. This has happened a few times to me before but I've always been at the hospital and there has been an oxygen supply and docs to help me. This time I was just with Al and his friend Charlie, at our flat, and they were panicking! The only way I could get air into my body was to cough. I had a dry cough so I knew it wasn't anything blocking my airways. I was also violently sick. Has this happened to anyone else before?! I don't know what causes it :S I had paramedics come and check me over- my breathing was back to normal when they arrived. I've also let the hosp know and I'm going up tomorrow to get seen. Hopefully they can come up with an explanation as to why it happened; my mum said it couldd be something called 'anaphylactic shock', so gonna look into what that is.

Anyone had this happen before and know what it is..?

xxx

Tuesday 23 October 2012

IV update

Been just over a week since I started my home I.V meds. Spent most of this week asleep lol, sleeping about 15 hours a day! I think my body is just working so hard to fight my infection in my chest, that it's knackering out the rest of me. Over the last couple of days I've started to nap less though, so hopefully things are going in the right direction.

Had a couple of bloodtests to check my 'levels', which means that they are making sure the meds that I am taking aren't affecting my liver too much. All's come back as good so far :)

Thinking about glamming up this lil blog a bit by doing a vlog. A 'vlog' is a video blog lol! Not made my mind up yet though as I'm sure I'll be cringing soooo much at watching a video of myself and putting it on the internet haha. So we'll see...

Also, tonight the car dealer in me sold my mama's old, bashed up nissan micra. It's been through the wars this poor little car and has all the war wounds to prove it, still runs fine though :) Anyway, I sold it in record time- within 40 mins of putting it up for sale on good old Gumtree, had someone come over, look at it and buy it cash in hand there and then! Think I've got a future career..!

That's all for now, dinner time :) loves xxx

Tuesday 16 October 2012

Hosp appointment

Over the last week or so my health has gone downhill quite a bit. Coughing more, breathless, tired, aching joints, sickness etc, the usual symptoms. Had hospital appointment yesterday, my oxygen levels were quite low for me at 88-89% and my lung function FEV1 had gone down to 59%. Thankfully my weight has stayed the same, which means that I haven't left it too long to get meds. So I'm now on IV meds and doing them at home :) So out comes the Friends boxset and 2 weeks in bed for me.

Also, while at the hosp, I found out the reason everyone comments on my 'curled fingernails' lol! Apparently when you get a lot of infections, your brain sends out some chemical that makes your nail bed swell. This is called 'clubbing'. When you don't have an infection, the swelling goes down and if you have a transplant, the effect goes completely and you have normal nails again lol.

Other than health stuff, Angel's been as cheeky as ever, biting through my nebuliser wire lol; me and Al are looking for our next place and Al is looking to buy a new pet... all will be revealed if he gets it ;)

That's all for now, hopefully next time I blog I'll be feeling better xxx

Monday 1 October 2012

Livingggg!

In the last two weeks, been seeing friends and family a lot and working here and there. Can't believe I'm still not on IVs, such a great feeling, it's been like 2 months! Longest since I was about 16 or 17. At the moment, I can feel that my chest is getting worse but I'm determined not to go on IVs until after my friend Isis's birthday partaaay :P So for now, just doing my physio and meds religiously and napping through the day to keep as well as possible xxx