Scare!

Last night I was doing my night time dose of meropenum and mid-way through I started to get a sudden back and stomach ache. Then a few seconds later my airways started getting really tight and I was struggling to breathe. My body swelled started going really numb and apparently my face swelled. It lasted for about 5 mins. This has happened a few times to me before but I've always been at the hospital and there has been an oxygen supply and docs to help me. This time I was just with Al and his friend Charlie, at our flat, and they were panicking! The only way I could get air into my body was to cough. I had a dry cough so I knew it wasn't anything blocking my airways. I was also violently sick. Has this happened to anyone else before?! I don't know what causes it :S I had paramedics come and check me over- my breathing was back to normal when they arrived. I've also let the hosp know and I'm going up tomorrow to get seen. Hopefully they can come up with an explanation as to why it happened; my mum said it couldd be something called 'anaphylactic shock', so gonna look into what that is.

Anyone had this happen before and know what it is..?

xxx

IV update

Been just over a week since I started my home I.V meds. Spent most of this week asleep lol, sleeping about 15 hours a day! I think my body is just working so hard to fight my infection in my chest, that it's knackering out the rest of me. Over the last couple of days I've started to nap less though, so hopefully things are going in the right direction.

Had a couple of bloodtests to check my 'levels', which means that they are making sure the meds that I am taking aren't affecting my liver too much. All's come back as good so far :)

Thinking about glamming up this lil blog a bit by doing a vlog. A 'vlog' is a video blog lol! Not made my mind up yet though as I'm sure I'll be cringing soooo much at watching a video of myself and putting it on the internet haha. So we'll see...

Also, tonight the car dealer in me sold my mama's old, bashed up nissan micra. It's been through the wars this poor little car and has all the war wounds to prove it, still runs fine though :) Anyway, I sold it in record time- within 40 mins of putting it up for sale on good old Gumtree, had someone come over, look at it and buy it cash in hand there and then! Think I've got a future career..!

That's all for now, dinner time :) loves xxx

Hosp appointment

Over the last week or so my health has gone downhill quite a bit. Coughing more, breathless, tired, aching joints, sickness etc, the usual symptoms. Had hospital appointment yesterday, my oxygen levels were quite low for me at 88-89% and my lung function FEV1 had gone down to 59%. Thankfully my weight has stayed the same, which means that I haven't left it too long to get meds. So I'm now on IV meds and doing them at home :) So out comes the Friends boxset and 2 weeks in bed for me.

Also, while at the hosp, I found out the reason everyone comments on my 'curled fingernails' lol! Apparently when you get a lot of infections, your brain sends out some chemical that makes your nail bed swell. This is called 'clubbing'. When you don't have an infection, the swelling goes down and if you have a transplant, the effect goes completely and you have normal nails again lol.

Other than health stuff, Angel's been as cheeky as ever, biting through my nebuliser wire lol; me and Al are looking for our next place and Al is looking to buy a new pet... all will be revealed if he gets it ;)

That's all for now, hopefully next time I blog I'll be feeling better xxx

Livingggg!

In the last two weeks, been seeing friends and family a lot and working here and there. Can't believe I'm still not on IVs, such a great feeling, it's been like 2 months! Longest since I was about 16 or 17. At the moment, I can feel that my chest is getting worse but I'm determined not to go on IVs until after my friend Isis's birthday partaaay :P So for now, just doing my physio and meds religiously and napping through the day to keep as well as possible xxx

MY BIRTHDAY!

IT'S MY BIRTHDAAAAY!! 20 today, bye bye teenage years :( Have had a great birthday though. On Friday me and Al visited my Godmother Cindy and had a take away with her and her boyfriend, with a harbio cake :P

On Saturday, my mum had planned a surprise for me.. I milked a cow!! It was so much fun, the cows were hugee. It felt so weird and I milked a few pints from the cow, named Jackie, for the baby calves to  drink. Learnt a lot about milk and milking cows lol ;) That's also one thing I can cross off my bucket list :) Here's some picsss...

Today, me and Al went up to Battersea Dogs and Cats Home, just for a visit. We've been watching the Paul O'Grady show and they are doing tours of behind the scenes. We saw some very cutee dogs! I'm deffo going to rescue a dog when I finally get one (next year!)

 

On to our bunny Angel, she's having her free health check tomorrow as it's Rabbit Awareness Week. We're going to find out if she actually is a girl or not haha!

Also have a hosp appointment tomorrow, think I might need IV meds this time as the oral tabs the hosp gave me haven't done an awful lot.

xxxx

Good week :D

Over the last week I had been feeling more tired and been coughing more etc- all the usual symptoms that my chest infection was coming back. So when I booked to have my port flushed (the little tube/barrel thing under my skin where my IV meds go) I decided to see if I could see a doc too. Went up and did a lung function test and did my usual sats and weight, and surprisingly they came back pretty good! My lung function had dropped to FEV1 62% and FEV2 86%, which is a decrease of about 8% and thankfully my weight had stayed the same!! :D Barbara, one of the docs, said that she didn't feel I needed IVs yet, so gave my some oral meds. I hateee these ones though because you can't have milk or iron tabs 2 hours before or after, so it's difficult to time. Plus they make me feel so sick :( but if they work then I don't mind. So fingers crossed that with this course of meds, plus really good physio, I might not need IVs for a while.

This week, I went fishing for the first time ever. It weren't as boring as I'd expected, but if we had gone during the day I reckon I would have enjoyed it more because I would actually be able to see my rod! Didn't catch anything though :( and couldn't take any pics because mysteriously, my flash on my camera has broken.. :S

Also, I'm so proud of myself- I fixed the boiler with no help from any men. Al and his mate came up with every excuse under the sun as to why they 'couldn't fix it', but by simply ringing up this boiler women, she helped me figure out what was wrong with it and said I could easily fix it myself :D

Angel is being so cheeky at the moment! She runs round the house like lightning and keeps trying to dig up our laminate flooring lol :P and she's so cute, she now jumps up on the sofa when I'm sitting on it for a stroke :)

xxx

Introducing Angel

Eeekkk this week we got a baby bunny from Freecycle! The man we got her off was animal mad- he had a dog, horse and at one point 60 rabbits!!! So he was giving his bunnies away to families :) when we arrived, there were 5 to choose from- 3 adults and 2 babies. Alex wanted a baby rabbit so we took the little black one. We've called her Angel Delight ;) but we usually just call her Angel lol. She's so mischievous! Can't resist a few pics of her- she's quite hard to see because her fur is so dark....

My chest is still holding out too, which is great :D my ankles and knee have started to swell again with the arthritis so on some anti-inflammatorys but thats the only thing that's really changed this week- so happss!! :D

And finally, congrats to my eldest cousin Michelle who is engaged!!!!!!

xxx