Wednesday, 19 December 2012

2 weeks of IVs later...

I've had nearly 2 weeks of IV antibiotics to treat my chest infection and I'm feeling great. I am coughing a lot less, eating a lot more, and have more energy. Love the feeling after being on IVs <3 feel so well! Been eating really fatty things too over the last few days- bacon sarnies drenched in oil, pints and pints of milk, loads of angel delights, and I'm sure over Christmas I will be stuffing my face too :D Hopefully my good health will last a bit longer this time.

The doc has suggested I re-try Tobi through my nebs again. I haven't had it in about a year because I felt the effects were wearing off; however, now that I haven't had it in a long time there is a good chance it will be able to keep my infection at bay again.

It's 6 days till Christmas and 2 weeks until me and Al move into our second home!! :D can't wait. I'm also trying to get onto a dog grooming course for the new year. I really really hope I get on it, it's my absolute dream to work with dogs. If I do get onto the course, next year is looking gooooood!

----    BREAKING NEWS    ----

I've just heard that Kalydeco (the amazing new drug that is saving lives of people with CF with the gene type G551D) has now been made available for anyone over the age of 6 with the right gene type. This is down to the brilliant campaigning that families and the CF Trust have done to convince the government to let us have it. And my friend George told me that they are currently trilling another drug for another gene type. I'm not sure which gene type I am (need to find this out!) but either way it's the best news ever! Finally, we may be able to breathe <3


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