Saturday, 26 April 2014

IV time

My course of oral antibiotics came to an end and I went back up to hospital with the hope of starting home IVs, as I wasn't really feeling any different. Thankfully my appetite is still pretty good, but I've been coughing a lot and slept through the majority of Easter!

So Barbara did my lung function again and the FEV1 had gone up a bit :D I'm now up to 58%. We still agreed that I should go on IVs though. So I'm on Tobramicyn and Meropenum for a couple of weeks now. I've worked out that I haven't had IVs for nearly 3 and a half months! That's the longest I'e gone without them for God knows how long, so happy :D

I'm going to rest more over the next few weeks so that the medicines can work to their full potential; but I will still keep up with going to the gym. I had my 6-week review thing the other day with one of the hot instructors ;) We did loads of workouts and my muscles are killing me right now- I can barely move haha. No pain, no gain though!

Tuesday, 15 April 2014

Needing a boost

At my last clinic app, I mentioned to the docs that I was starting to feel as if my chest was going downhill, so they said to come back in a week if there was no improvement following switching my nebulised antibiotics. I decided to go back and get some orals as I needed to go up to have my port flushed anyway. Good Lord did it take forever- 5 hours I was in there! It takes literally 10 mins to flush my port, but waiting to Barbara, one of the docs, just took soooooo long! I was so frustrated but eventually I came out with some oral meds for 2 weeks.

The meds I'm on instruct you can't take them with calcium, iron or zinc. I am literally addicted to milk lol and I just can't give it up, so I'm waking myself up in the middle of the night and very early in the morning to take them so I can still have my lovely milk haha. Corr the sacrifices you have you make 'ey ;)

Fingers crossed these orals will do the trick, much more likely now that I no longer have Serratia. If not then I'll probably end up on a course of IVs. So far I have been 3 months without them! So if I do need them, I won't feel disappointed in myself.

Finally, Easter is here :D Which means loads of birthdays, friends back from uni and the sun is out! Love this time of year when you know summer is just round the corner; fun fun fun! xo