Friday, 19 April 2013

Hen night eve!

Eeeeekkkk! Today is my hen night eve and Alex's stag night eve. So excited for tomorrow- I'm going to my mum's for the afternoon for games, drinks, nibbles etc and then up to London to see the Dreamboys- a male strip show like magic mike ;) with all my girlssss, plus Daniel of course!

I'm glad I'm excited now, because at the beginning of the week I was dreading it. My body felt so drained and exhausted and just the thought of dressing up and going to London made me sleepy! I haven't had the best few weeks chest wise: I went up to hosp last week for an appointment but there was a delay of an hour and 45 mins, so me and Alex decided to go home as we wouldn't have been seen till about 6pm. Then no doubt rushed through and then have to wait an hour for pharmacy and not get home until about 8.30pm!

I re booked and went home. I'd had a cold which stayed on my chest and my voice had gone- I just wasn't feeling great tbh. So this week I just relaxed for once and stayed in bed watching Vampire Diaries <3 I think it's done me a world of good :)

Went up hosp today, just to Lind ward, which is where you don't see dietician, physio etc, just one of the docs. Anywhooo, they decided to put me on IVs again. This time Tobramycin and Keftazadine (don't know the spellings), as my lung function had dropped and sadly my weight has gone down even further :(

But I'm determined to be well for my wedding day and put on weight so I look good for it :D Serious physio, force feeding and bed rest for the next two weeks. This stupid infection is not going to ruin my day!

Pics of the hen and stag will obviously be up next blog...

loves xxxx

Monday, 8 April 2013

Not great news

Bit of a negative blog to start with this time :( Firstly, been reading so many CF deaths on my Facebook newsfeed this week, so heartbreaking. My prayers are for all the friends and families affected. If you haven't already, pleeeaseee sign up- or at least consider signing up for organ donation. You won't need them when you're gone, but someone else will. Takes literally 1 minute of you life, but you could give someone else years!

Secondly, after having my two week IV course a few weeks ago, I am feeling awful again! :( This is so NOT the situation I wanted to be in at the moment! Just a few weeks until my wedding, when I was planning on trying to gain as much weight as possible, I'm struggling to eat three meals a day again and coughing and sleeping none stop. SOOOOO FRUSTRATING!!!!!!!! Makes me so angry with my body when I try so hard to keep myself well with strict physio routines that take hours every day and never missing any meds and still my stupid body decides not to give me a break and just keeps failing on me :(

When I was last at hospital, however, they said they'd found a new bug in my chest. Maybe this is why even though I'm doing everything I should, my body still feels like crap? Going up today for an appointment so I have everything crossed so that they can give me information and hopefully new drugs that will kill this horrible bug!!!

On to happier things...!

My little bear Barney is 4 months now! And finally he has stopped weeing in the house lol. I've given him a little accessory too, his little scarf! He looks super cute in it, here's a little pic...

Also, I can cross off one more thing on my bucket list- I WAS ON TV! I went to see the filming on Celeb Juice with my friends and for one milli-second I was on TV :D I don't care that I was only a blur in the background- I'm still counting it haha ;)