Tuesday, 29 May 2012

Allergic reaction

Haven't felt like blogging due to not feeling well :( last time I blogged, the hosp had put me on Chlorenphenacol antibiotics for 2 weeks, however last week I had a reaction to them and my whole face went red, itch, spotty and inflamed. It's still very itchy and inflamed and it looks like I have acne :( not a good move for the old confidence lol. Alex found it a time passer up at the hospital to COUNT the spots on my face!!! Thanks Al :/

You can kinda see the remains of my rash in this photo

So the hosp have given me E45 cream to try and get rid of my reaction and I'm now back on home IV's. I just hope soooo bad that they work and work quick because I'm hoping to go on a last minute holiday with Alex and my friends Emily and Billy in 3 weeks- fingers crossed!

Just a short blog today, going to back to bed to rest up and try and get better asap :)

lovess xx

Tuesday, 15 May 2012

Discover Dogs

I'm still awake at 9:10pm, which has been rare for the last few days! My chest has become a lot worse thanks for the stupid pseudomonas that I have; it's the bug I "home" in my lungs but I can't get rid of it. My chest reminds me of a rechargeable battery: by going on IVs I'm recharging it and then I'm using myself, like waiting for the energy to run low before I need to "charge" it up again.

This time the symptoms were more or less the same as usual: breathlessness, increased coughing, less appetite, more sleepy. However during last night I also had some chest pains in my right lung :/ I hardly ever get this and I never really know why I do. I've been getting it when I'm coughing hard, feels like a bruise.

Yesterday I went to Brompton for my appointment. My FEV1 had decreased to 69% from 84% and my FEV2 had only dropped to 94% from 96%. Sadly the hosp aren't too bothered about FEV2- otherwise they'd be really pleased with me lol! Sats had dropped to 95% too, still OK but not perfect. They've put me on oral medication so hopefully I won't be needing IV's for a while. However, amazing news was that my weight had gone up to 48kg!!!!!! :D :D I've never ever ever been this heavy in all my life, so happy! I proudly weigh 7 and 1/2 stones. It's so difficult for people with CF to put on weight and it makes me so self conscious of how thin I look. I'd love to be fat and actually have to diet lol :P

Other than hospital stuff, I also went to the London Pet Show this week. I loved it! My favourite section was obviously the Discover Dogs. Here are some piccys of me at the Pet Show.

 Me and a golden retriever 

Me and a sausage dog!

Either last weekend or the weekend coming up (sorry Debbie, I've forgotten which one!) My aunty Debbie has/is running AGAIN to raise money for Cystic Fibrosis. If you want to be generous and sponsor her, her link is http://uk.virginmoneygiving.com/DebbieTrigg


For the week ahead, I hope that the weather cheers up and summer can finally start. Also, this time next week, we'll know whether or not Alex has passed his practical driving test (fingers crossed!) Also, I might apply for a job working with my mama! :D It's for a receptionist job at a doctors surgery so I'll need to think about whether it would be suitable for me to work there and stuffsss...

Speak next week, loves xxx

Saturday, 5 May 2012


This last week and a half has been busy! We've had some very exciting news, a new addition to the family :) (no, not a baby) a hamster who we've named Boris! Me and Al adopted him from our friend Charlotte. He's so sweet, and so fidgety. Techinicallyyyy, we're not allowed pets in our flat, but the neighbors have a cat so we thought we could have one little hamster ;) here's some pics of him.

Our friend Charlotte, who gave us Boris, has a wee baby too! We see her and Riley-Jack most weeks, and she recently asked me and Al to be his Godparents!! :D We're so excited. Riley is about 4 months old now <3

Little baby RJ

Me and Charlotte

More amazing news for me is that I have FINALLY finished my A levels woooooo!!!!! :D Felt so great to hand in my final piece of coursework. Next, I'm going to look for either paying or voluntary work in a dogs kennels or a dogs rescue and rehoming centre :) fingers crossed I can find something!

Time for a rant :)...
Alex is currently down as my full time carer because he's with me "for at least 35 or 40 hours a week" (can't remember which it is), and because he helps me with everything I can't do when I'm ill; from pushing me in my wheelchair to helping me have a bath. The government are supposed to give him £55.55 a week for doing this- which in my opinion isn't enough to live on seeing as the government say that "a person can live on £62 per week" :S ... Anyway, for the last 7 weeks, they haven't given him any money! I don't think they realise that without money you literally cannot live. If he weren't living with me, and we didn't share everything, he wouldn't even have anything to EAT! So naturally, thanks to the poxy carers scheme, we are pretty skint until he starts getting paid again. Plus they said they aren't going to backdate him :/ grrrr!!!!

Anyway, rant over :) On the bright side, it's not long until Alex has his driving test- hopefully he will pass, then he can do all the driving when I'm ill instead of me coughing the whole time and probably being dangerous on the roads.

My health has really gone down fast in the last week :( I'd managed 4 weeks without being ill- it seemed like a lot longer though thankfully :) I've got a hospital appointment on 14th, but I may try and change it for sometime this week if I deteriorate anymore this weekend.

Will let you know next week ;)

Lovessss xxx