Thursday, 25 February 2016

On the mend

A beautifully sunny morning will always improve your day.

Quick update from the last blog: the orals didn't do much for me this time so I asked for an appointment to see the doc and see if I can start some IVs. For some reason the clinic has been overly  busy these past couple of months and I wasn't able to get a sooner app than what I already had booked in. Soooo, 5 weeks of being unwell has obviously had quite a knock on my health. My lung function has dropped by 15% to 43%, I have lost 2KG putting me at 50KG, sats have dropped to 92% and I just generally haven't been in a good state.

The good news is, I have finally started home IVs :D I'm on day 4 and I usually get worse before I get better, but I will soon be back to my usual self- busy, eating loads, managing grooming, housework, socialising.... Cannot wait!!!

The last few days I've been feeling so low. It's not like me. I can only put it down to that after a much longer than usual wait for some meds, my body is just so exhausted and I'm getting ratty because of that. My plan today is to just stay in bed and rest; hopefully that'll do me some good. Plus the sun is out, and that always makes me happy :) can't wait for summer!

I probably should reschedule all my grooming, but I just hate doing that. I hate letting people down, and I enjoy seeing the dogs. They're all good dogs that I have booked in though, so I reckon I'll be alright. Plus, I can always ask Alex or my sister to bath them- that's the most exhausting part.

When I went to hosp, I saw a poster about a new trial-type-thing. It's a bit different from the usual medicine trials. It's a smartphone based trial. The aim is to try and keep patients out of hosp for longer- always a good thing! So the patient will be given a smartphone, set of scales, mini lung function kit, mini sats and heart monitor kit, FitBit type thing, mini freezer and a cool bag. Everyday for 6 months you need to measure your weight, lung function, heart rate, 02 levels, activity levels and give a sputum sample and send it via bluetooth to the smartphone (take the samples to clinic when you go). This will upload onto the trial database place. The researchers are looking for patterns in patient's results to see if they can detect when they are going have an infection, before it takes hold. Therefore, starting treatment earlier and not spending so much time in hosp. So I've said I'm interested and hopefully can start this trial soon.

Will let you know how it goes!


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