I saw Dr Orchard this morning to discuss the plan of attack and my results and all that. My lung function is creeping up slowly but surely; I'm up to 39% now and my CRP hasn't moved much at 41, but at least it hasn't gone back up. I changed meds about 4 or 5 days ago as the previous ones weren't having much of an effect. Chris is now happy with the combo and thinks that we just need to stick it out a bit longer but it should have a good impact. He also thinks a lot of the issue is inflammation, which takes a little while to settle.
Good news though is that they stopped my oxygen today woo! It's nice to be able to go to the toilet without feeling like a dog on a lead haha. I still need it at the moment for exercise but it's a great step in the right direction :D
I have also been given the OK from Chris to attend ladies day as long as I feel up for it. I won't make a final decision until a day or two before the event, as I just don't know how I will be this time next week. The arrangement for the day was for all my friends to come to mine and Al's for a champagne breakfast and we've booked cabs to get up to the downs, so we may need to tweak the plans, but we will see. I called up the racecourse for advice as to whether it was suitable to bring my wheelchair if I'm needing it. The woman was very helpful and the event is accessible for chairs, which is a relief and puts less pressure on me to be 100% and able to stand for the whole day. At least, even if Im only feeling 50% I should still be able to go and can take my chair to be in when needed. Looks like I won't have time to go dress shopping though, so will need to route through the wardrobe for something to wear.
For physio, as well as the Bird and percussion, I am exercising more now that I've got more stable sats and it's not too much for my body anymore. I've been using the exercise bike and managed to convince the physios to take me for walks outside; I don't want to miss out on this sun! Trying to top up my tan as we walk round the car park haha.
The steroids are making me super hungry still, which is great but my god is my face getting chubs! I've got the usual moonface that comes with taking prednisolone. The food here is so good. I never thought I'd say that about hosp food. I prefer it to my own cooking haha. There is such a variety and it always tastes so nice. I'm very lucky to be here where they clearly have really good chefs.