Eeeeekkkk! Today is my hen night eve and Alex's stag night eve. So excited for tomorrow- I'm going to my mum's for the afternoon for games, drinks, nibbles etc and then up to London to see the Dreamboys- a male strip show like magic mike ;) with all my girlssss, plus Daniel of course!
I'm glad I'm excited now, because at the beginning of the week I was dreading it. My body felt so drained and exhausted and just the thought of dressing up and going to London made me sleepy! I haven't had the best few weeks chest wise: I went up to hosp last week for an appointment but there was a delay of an hour and 45 mins, so me and Alex decided to go home as we wouldn't have been seen till about 6pm. Then no doubt rushed through and then have to wait an hour for pharmacy and not get home until about 8.30pm!
I re booked and went home. I'd had a cold which stayed on my chest and my voice had gone- I just wasn't feeling great tbh. So this week I just relaxed for once and stayed in bed watching Vampire Diaries <3 I think it's done me a world of good :)
Went up hosp today, just to Lind ward, which is where you don't see dietician, physio etc, just one of the docs. Anywhooo, they decided to put me on IVs again. This time Tobramycin and Keftazadine (don't know the spellings), as my lung function had dropped and sadly my weight has gone down even further :(
But I'm determined to be well for my wedding day and put on weight so I look good for it :D Serious physio, force feeding and bed rest for the next two weeks. This stupid infection is not going to ruin my day!
Pics of the hen and stag will obviously be up next blog...
loves xxxx
Friday, 19 April 2013
Monday, 8 April 2013
Not great news
Bit of a negative blog to start with this time :( Firstly, been reading so many CF deaths on my Facebook newsfeed this week, so heartbreaking. My prayers are for all the friends and families affected. If you haven't already, pleeeaseee sign up- or at least consider signing up for organ donation. You won't need them when you're gone, but someone else will. Takes literally 1 minute of you life, but you could give someone else years!
https://www.organdonation.nhs.uk/how_to_become_a_donor/registration/consent.asp
Secondly, after having my two week IV course a few weeks ago, I am feeling awful again! :( This is so NOT the situation I wanted to be in at the moment! Just a few weeks until my wedding, when I was planning on trying to gain as much weight as possible, I'm struggling to eat three meals a day again and coughing and sleeping none stop. SOOOOO FRUSTRATING!!!!!!!! Makes me so angry with my body when I try so hard to keep myself well with strict physio routines that take hours every day and never missing any meds and still my stupid body decides not to give me a break and just keeps failing on me :(
When I was last at hospital, however, they said they'd found a new bug in my chest. Maybe this is why even though I'm doing everything I should, my body still feels like crap? Going up today for an appointment so I have everything crossed so that they can give me information and hopefully new drugs that will kill this horrible bug!!!
On to happier things...!
My little bear Barney is 4 months now! And finally he has stopped weeing in the house lol. I've given him a little accessory too, his little scarf! He looks super cute in it, here's a little pic...
Also, I can cross off one more thing on my bucket list- I WAS ON TV! I went to see the filming on Celeb Juice with my friends and for one milli-second I was on TV :D I don't care that I was only a blur in the background- I'm still counting it haha ;)
https://www.organdonation.nhs.uk/how_to_become_a_donor/registration/consent.asp
Secondly, after having my two week IV course a few weeks ago, I am feeling awful again! :( This is so NOT the situation I wanted to be in at the moment! Just a few weeks until my wedding, when I was planning on trying to gain as much weight as possible, I'm struggling to eat three meals a day again and coughing and sleeping none stop. SOOOOO FRUSTRATING!!!!!!!! Makes me so angry with my body when I try so hard to keep myself well with strict physio routines that take hours every day and never missing any meds and still my stupid body decides not to give me a break and just keeps failing on me :(
When I was last at hospital, however, they said they'd found a new bug in my chest. Maybe this is why even though I'm doing everything I should, my body still feels like crap? Going up today for an appointment so I have everything crossed so that they can give me information and hopefully new drugs that will kill this horrible bug!!!
On to happier things...!
My little bear Barney is 4 months now! And finally he has stopped weeing in the house lol. I've given him a little accessory too, his little scarf! He looks super cute in it, here's a little pic...
Also, I can cross off one more thing on my bucket list- I WAS ON TV! I went to see the filming on Celeb Juice with my friends and for one milli-second I was on TV :D I don't care that I was only a blur in the background- I'm still counting it haha ;)
Monday, 25 March 2013
IV update and business launch!
I'm coming to the end of my 2 week course of IVS. Have an appointment on Weds to see if my lung function is up enough for me to stop them. I'm still quite tired and coughing a lot at the moment, but my appetite has increased yaaaaaay!! Hopefully can get somewhere close to 50kg for my wedding :)
Speaking of wedding, it's just under 7 weeks away! I feel like that's still a long time, but i'm sure it'll fly by.
Also, last week I launched my own BUSINESS! Yes, I am now officially a business woman. It's called Short Bark and Sides and is a dog grooming business. Check out my facebook page and website and let me know what you think :)
https://www.facebook.com/pages/Short-Bark-and-Sides/120522034804277?ref=hl
www.shortbarkandsides.moonfruit.com
Having my own business is going to allow me to work in my own time, at my own pace, and when I'm feeling up to it. I could never work a typical mon-fri 9-5 job as I would be absolutely K.Oed after the first day! My CF in the last few years has dramatically changed my abilities to work and at first I worried that I'd never be able to do anything with my life except sit on my arse all day scrounging benefits. But thankfully my family and friends have helped and supported me in creating my own little business that gives me some independence and joy. Now all I need is clients... ;)
Take care xxx
Speaking of wedding, it's just under 7 weeks away! I feel like that's still a long time, but i'm sure it'll fly by.
Also, last week I launched my own BUSINESS! Yes, I am now officially a business woman. It's called Short Bark and Sides and is a dog grooming business. Check out my facebook page and website and let me know what you think :)
https://www.facebook.com/pages/Short-Bark-and-Sides/120522034804277?ref=hl
www.shortbarkandsides.moonfruit.com
Having my own business is going to allow me to work in my own time, at my own pace, and when I'm feeling up to it. I could never work a typical mon-fri 9-5 job as I would be absolutely K.Oed after the first day! My CF in the last few years has dramatically changed my abilities to work and at first I worried that I'd never be able to do anything with my life except sit on my arse all day scrounging benefits. But thankfully my family and friends have helped and supported me in creating my own little business that gives me some independence and joy. Now all I need is clients... ;)
Take care xxx
Thursday, 14 March 2013
Feeling rough!
So I finished my 2 week course of Septrin, an oral antibiotic, and felt no better. Therefore I went up to Brompton yesterday and had another lung function and the usual weight, sats etc. My lung function had dropped a bit, but thankfully m weight had increased a bit! We decided that I should start home IVs, so now I'm on Tobramicyn and Meropenum again. This should hopefully be my final IV course before my wedding!
This morning I felt sooooo rough, my chest was really tight and I felt that my airways were inflamed. Hopefully it is just a sign that the IVs are already starting to work to get me better. It's going to be hard to relax for these two weeks as I have a lot to do for my wedding and I've got friends wanting their dogs groomed- just waiting for my table to arrive :) But I am going to try and get as much bed rest as possible.
Last night, for the first time ever, Barney managed to jump up onto the bed! He's been too small to clamber up before but now he is big enough. I can't believe how fast he is growing! I'm hoping to get him booked in for the chop next week, as he's already humping things haha
xxx
This morning I felt sooooo rough, my chest was really tight and I felt that my airways were inflamed. Hopefully it is just a sign that the IVs are already starting to work to get me better. It's going to be hard to relax for these two weeks as I have a lot to do for my wedding and I've got friends wanting their dogs groomed- just waiting for my table to arrive :) But I am going to try and get as much bed rest as possible.
Last night, for the first time ever, Barney managed to jump up onto the bed! He's been too small to clamber up before but now he is big enough. I can't believe how fast he is growing! I'm hoping to get him booked in for the chop next week, as he's already humping things haha
xxx
Tuesday, 26 February 2013
Barney Bear!
In my last blog, I wrote that there might be a little bundle of joy coming soon... and on valentine's day me and Al bought our little pup Barney home! He's a Portipoo (portuguese water dog X poodle), in photos he just looks like a black ball of fur haha. We've had him for a week and a half and we love him soooo much!!! can't believe I finally have a dog :D
My chest is pretty bad at the moment, along with my arthritis :( so yesterday I went up to hosp to see if I could get something to try and help my chest. I was short for time as we had a dentist app in the afternoon so the docs and I decided to try an oral med (septrin) for two weeks and if I hadn't improved then I'll go on IVs. If we weren't short on time, I'd probably be on IVs now but usually if you start IVs, you're up the hospital for about 6 hours, whereas if you just go on orals, you're there for around 3.
My results from lung function, sats etc were... lung funtion: FEV1- 63% FVC- 87%, O2- 97% and weight- 47kg. Lung function and O2 levels were ok, but I'm sooooooooooo gutted about my weight :'( it had taken me over 3 months of hard, hard work and constant eating of junk food just to put on that 1kg and within 3 weeks it has gone! So frustrating. My target weight of 50kg for my wedding looks less likely to be achieved at the moment.
My chest hasn't been helped by all my nebulisers crashing out on me either! Plus the cold after cold after cold I've been getting like everyone else :/ can't wait for warm weather lol :D I think Barney knows I'm particularly ill today as he hasn't left my side all day bless him <3
moan over lol...
I've now completed my dog course too. At the moment I'm recovering from it lol, but as soon as I'm better I'm going to start up and do some grooooming. Plus my bridesmaids are kitted out now and look beautiful :) xxxxx
My chest is pretty bad at the moment, along with my arthritis :( so yesterday I went up to hosp to see if I could get something to try and help my chest. I was short for time as we had a dentist app in the afternoon so the docs and I decided to try an oral med (septrin) for two weeks and if I hadn't improved then I'll go on IVs. If we weren't short on time, I'd probably be on IVs now but usually if you start IVs, you're up the hospital for about 6 hours, whereas if you just go on orals, you're there for around 3.
My results from lung function, sats etc were... lung funtion: FEV1- 63% FVC- 87%, O2- 97% and weight- 47kg. Lung function and O2 levels were ok, but I'm sooooooooooo gutted about my weight :'( it had taken me over 3 months of hard, hard work and constant eating of junk food just to put on that 1kg and within 3 weeks it has gone! So frustrating. My target weight of 50kg for my wedding looks less likely to be achieved at the moment.
My chest hasn't been helped by all my nebulisers crashing out on me either! Plus the cold after cold after cold I've been getting like everyone else :/ can't wait for warm weather lol :D I think Barney knows I'm particularly ill today as he hasn't left my side all day bless him <3
moan over lol...
I've now completed my dog course too. At the moment I'm recovering from it lol, but as soon as I'm better I'm going to start up and do some grooooming. Plus my bridesmaids are kitted out now and look beautiful :) xxxxx
Wednesday, 13 February 2013
DISTINCTION!
Had my written part of my dog grooming exam yesterday... AND I PASSED WITH DISTINCTION! So happy! Just have the two practicals left, then another written exam in a few months :) I'm also so pleased with how my chest has coped. There have been difficult days where my bones are aching and I'm coughing all the time, but generally my body has been good and allowed me to do this course in peace :D I've switched back to my Azli nebuliser (I alternate each month with Tobi) so I'm hoping it will give me a little kick in the right direction.
The wedding plans are coming together nicely too :D Most of the invites are done and some have been sent out... look out for yours ;) I'm trying to convince Alex to let us get doves to release after haha- he's not too keen atm but watch this space :P
Also, there may be another little surprise on it's way... (not a baby!)
Keep well xxxxx
The wedding plans are coming together nicely too :D Most of the invites are done and some have been sent out... look out for yours ;) I'm trying to convince Alex to let us get doves to release after haha- he's not too keen atm but watch this space :P
Also, there may be another little surprise on it's way... (not a baby!)
Keep well xxxxx
Sunday, 3 February 2013
Hospital and dog grooming course update
Been very busy recently with wedding planning, my dog grooming course and general life. Went hospital last week and was surprised to find my lung function had gone UP! FEV1 was 72% from 69% and FVC was 97% from 96%. My weight had also crept up to 48.4kg :D
The stats are good, but these last few days I've been feeling so rough. Aching all over and my chest is really bad, constantly coughing. Also my appetite has vanished and I can barely eat breakfast or lunch most days :( Got a feeling that 48.4kg is gunna drop :(
However, I'm not going to go on IVs or go into hosp just yet, I still need to complete my dog grooming course :) I'm about half way through at the moment, and I love it so much! Learning so much about grooming and dogs in general. Once it's completed though I think I'm just gunna collapse in a heap and sleep for a month haha. It has proven to me that there is no way Id be able to do a full time 9-5 job at the moment. Just doing 2 days in a row at the dog grooming course knackers me out so much that I fell asleep on the train home and missed my stop lol! My plan is to work from home where I can work on my own terms and times, with Alex's help :) That way, I hopefully won't get ill from working long days and over doing it.
xxxxxxx
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